Community Roundup Uncategorized

Community Roundup: What’s Your Favorite Thing About The Disability Community?

There’s this concept of ‘chosen family’ that refers to people you surround yourself with who support you. It’s a big concept in the LGBTQ community, where many people feel isolated from their biological families, but chosen family is equally important to the disabled and chronic illness communities for the same reason. This week, we asked […]

There’s this concept of ‘chosen family’ that refers to people you surround yourself with who support you. It’s a big concept in the LGBTQ community, where many people feel isolated from their biological families, but chosen family is equally important to the disabled and chronic illness communities for the same reason.

This week, we asked members of Folks’ Twitter community what their favorite thing about the chronic illness and disability community was. What many of the answers we received touched on was this concept of ‘chosen family’ and how much online communities can help support someone who is dealing with a life-changing illness or condition.

Also, this week we’re asking our followers: “What’s something you never thought you could accomplish when you were diagnosed, but which you successfully do now?” We’d love to hear your thoughts, so follow Folks on Twitter (@folksstories) and let us know! We’ll post our best answers next week.

Additional reporting by Josh Andrew.

Creative Commons photo by Lindsey Turner.

Community Roundup Q&As

Community Roundup: What’s The Best Advice You’ve Ever Received About Being Chronically Ill?

Tell your story. Advocate for yourself as a patient. Replace your old dreams or new ones. Here's some great advice on being disabled or chronically ill from our Twitter community.

Life is full of unwanted advice, from odious mansplainers to outmoded counsel from gently clueless elders. Unfortunately, when you’re chronically ill or disabled, this dial can often feel turned up to 11, as friends and acquaintances bombard you with advice that–while well-meaning–can often feel fairly clueless.

But that’s not always the case. Sometimes, someone actually gives really great advice, and it makes a profound impact on our lives. So for this week’s Community Round-Up, Folks‘s Twitter followers what piece of advice they had received on being disabled or chronically ill that was actually transformative to the way they handled their condition? What follows is some of our community’s best advice.

Also, this week we’re asking our followers: “What’s the most insightful question you’ve been asked about your disability or chronic illness?” We’d love to hear your thoughts, so follow Folks on Twitter (@folksstories) and let us know! We’ll post our best answers next week.

Additional Reporting by Josh Andrew.

Community Roundup Q&As

Community Roundup: Imagining A World Where Disability Is Normal

From workplaces offering 'good health' days instead of sick days, to universal, affordable health care, a world in which it is 'normal' to be disabled or chronically ill doesn't sound dystopian at all. In fact, it sounds like heaven.

What does it mean to be normal? There’s lots of ways to answer that question, but if we’re being honest, most people would probably not consider chronic illness and disability as part of the recipe. But that’s wrong. In our lifetimes, every person will get sick, manage a health condition, or become disabled, so it’s *just* as normal–if not more so–to be dealing with these issues as it is to be walking around in so-called “good health,” with no health conditions whatsoever.

That got us thinking. If the average person’s definition of normal is so far off-base, what would the world look like if people with disablities got to define the idea of a ‘normal’ life?

So through our Twitter account, we asked our community, and the answers we got back were amazing. Here’s some of the best we received:

What do you think? What would the world look like if people with chronic illness or disabilities got to define the definition of ‘normal’? Follow us on Twitter @folkstories and let us know!