Stories About

Genetic & Congenital Diseases

Folks Video Story: Painting In Pain

"I don't like putting my pain in my work a lot," says painter Hertz Nazaire, who has Sickle Cell disease. "But it sneaks in there. It can't be helped."

Wheelz in the Air

To Aaron Fotheringham, founder of Wheelchair Motorcross, spina bifida isn't a curse. It's an opportunity to blow people's minds.

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Singing At The Top Of Her Lungs

Julia Rae may have cystic fibrosis, but that hasn't stopped her from being a rising star in the worlds of singing, acting, and pageantry. Oh, while running the occasional marathon besides.

MS and Sickle-Cell Can’t Keep This Motorcycle Mom Down

Rona Wiggins was told it was too dangerous for her to get pregnant. But there's more than one road to becoming a mom.

Spider Hands

How Marfan Syndrome killed my music career, replaced it with a writing career, and helped me see the connective tissue flowing through everything.

What It’s Like To Live With Sickle-Cell

The blood disorder, which primarily affects people of African descent, shows the ways in which racial prejudice can cause the health care system to break down.

Fighting Cystic Fibrosis With A Rumble And A Roar

When his condition was at its worst, Paul Underhill designed his own nourishment drink to prevent himself from starving. Now, he sells his drink across Canada to help others.

Riding, Running, and Swimming To Beat A Fatal Genetic Disease

Justin and Lexi Clark aren't just in a race against giant axonal neuropathy, the disease that could kill them. They're in a triathlon.

No Pain, No Gain

Fitness instructor Leslie Nava teaches at a Brazilian Jiu-Jitsu gym to spite the rare disease which runs in her family... and to inspire her son, who was born with it.

License To Drive

For babies with mobility issues, the cool ride-on cars provided by Go Baby Go! are even better than motorized wheelchairs.

How To Design A Room To Heal In

Lynn Goode began thinking differently about interior design after she was diagnosed with multiple sclerosis.