Stories About

Rare Diseases

How Visions of Vietnam Helped Me Survive Paralysis

Changing my attitude and dreaming of another land helped me win a fight I almost lost against Guillain-Barré Syndrome.

How My Own Experience With Illness Helped Me Help My Grandma Die

My own battle with Guillain-Barré, a rare autoimmune disorder, gave me the experience and authority to be there for my grandmother at the end of her life.

Doctors Who Craft

Across the country, off-the-clock medical professionals are turning to knitting, baking, painting, lettering, and other crafts not just for fun, but to doctor their souls.

The Scars Mean Lifex

Working as a photojournalist in other countries has taught me that the true meaning of my keloid scars.

Paralyzed From Polio, A Cyclist Rides

His parents once thought he would never be able to walk. Now, Paralympian Alem Mumuni rides to show there's nothing the disabled can't do, given the proper chances.

From Bone Disorder To NFL Bone Crusher

As a child, former Dallas Cowboy Montrae Holland suffered silently with Blount's Disease for years, all for his love of the game.

My Mother’s Beautiful Smile

Through her invisible battle with multiple health conditions, including lupus and fibromyalgia, my mother has taught me the meaning of love and sacrifice.

Spider Hands

How Marfan Syndrome killed my music career, replaced it with a writing career, and helped me see the connective tissue flowing through everything.

Painting Giant Rainbow Animals To Heal

Mica Still has multiple chronic illnesses, from endometriosis to Sjorgen's Syndrome. That's why when she's well she paints as big as she can.

A Viral Campaign To Bring Disability To The Toy Aisle

Toy Like Me is putting pressure on the big brands to make their toys as diverse as kids are.

Putting A Face To America’s Ableism

Born with facial paralysis, the work of author, feminist, and public speaker Sarah Hollenbeck strives to get America to address the uncomfortable truth of its prejudices.