Stories About

Rare Diseases

Riding, Running, and Swimming To Beat A Fatal Genetic Disease

Justin and Lexi Clark aren't just in a race against giant axonal neuropathy, the disease that could kill them. They're in a triathlon.

In Sierra Leone, the Survivors of Ebola Fight Its Ghost

When he caught Ebola, Yusuf Kabba thought he was dead. Now, he fights the stigma and challenges that Ebola left behind.

The Girl Who Remembers Everything

Born with highly superior autobiographical memory, Rebecca Sharrock can remember every meal she's ever eaten, every book she's ever read, and every word ever said to her... almost back to birth.

The First Boy On The Sun

Born with a rare orphan disease--Fanconi Anemia--that mostly targets Ashkenazi Jews, Jacob Grossman is a ray of light to a family and community who couldn't do without him.

Breaking The Family Curse

Born with a rare and fatal prion disease that also took her father, Amanda Baxley Kalinsky is determined to fight back against Gerstmann-Straussler-Scheinker disease.

Black Disabled Girl Magic

Like everything else, disability is all too often viewed through a white cultural lens. That's something Vilissa Thompson is tirelessly trying to change.

The Colorful Totems Of Saint Frida Kahlo

Frequently housebound throughout her life, the legendary Mexican painter turned to fashion, curios, and knick-knacks to let her imagination travel as far as her art.

This Pale African Beauty Is Challenging The Stigma Of Albinism

In Nairobi, where albinos are persecuted and even killed for witchcraft, a 19-year-old model with albinism competes to be Kenya Miss Universe.

The Left Foot Of The Fastest Woman Alive

Although her leg was deformed by polio as a child, Wilma Rudolph didn't let her illness stop her from reaching Olympic gold.

When Life Takes A Sharp Left

Carla Charter and her three kids all have one of the rarest conditions on earth. They get through it with ingenuity, togetherness, and a wicked sense of humor.