Stories About

lupus

Learning How To Support Black People From My Disability

As a person with lupus, I realized I needed to support BIPOC the same way I want the world to support me.

Rejected Because I Can’t Have Kids

After lupus, my fertility became the elephant in the room on every date. But ultimately, I learned there's no right or wrong time to share details of your health.

Ask Ada: I Have The BRCA Mutation. Should I Have Kids?

Plus: I have lupus, and I think going back to teach might just kill me.

Why I Gave Up Looking For A Diagnosis To My Mystery Illness

In my twenties, I fell down a rabbit hole trying to find a diagnosis. For my sanity's sake, I eventually realized I had to give up.

Lupus Prepared Me To Survive COVID, But Society Wants To Sacrifice Me Anyway

In a crisis, America follows a familiar line of logic: it's okay if the chronically ill die, as long as 'real' people aren't inconvenienced.

Why Chronically Ill And Disabled People Are Furious About Coronavirus

As a person with an autoimmune disorder, you know what makes me angriest about COVID-19? The fact that the same accommodations society is making to contain the pandemic are the ones it refused to make for me all along.

When Someone Says They Are Disabled, Believe Them

Whether Jameela Jamil or a person sitting in a handicapped seat on a bus, we all have a duty to believe the experiences of others.

5 Hollywood Celebrities Living Chronically Ill Life Out In The Open

What do Jameela Jamil, Selma Blair, Serena Gomez, Michael J. Fox, and Lena Dunham have in common? A chronic illness they're not ashamed of.

Ask Ada: How To Get My Family Back On ‘Team Mom’ After Illness?

Plus: what to do when a family member believes you've just 'given up' about your illness.

Call Me A Biohacker, Not A Sick Girl

When you're facing a lifetime of illness, sometimes, you've got to glamorize what you're going through not to feel stuck in the sick life.

What Queer Eye Got Wrong About Disability

The popular Netflix show is all about acceptance and self-love. So why is it saying the opposite about disability?

Ask Ada: My Child Is Making Fun Of My Illness!

Plus: advice on how to get help when you have agoraphobia.