Stories About

orphan disease

The silhouette of a man doing a karate kick against a clouded sky at sunrise.

From Karate Kid To Paralysis

Jake Levitt was just 12 when he had his first attack of periodic paralysis, a rare orphan disease. The rest of his life has been spent fighting back.

The First Boy On The Sun

Born with a rare orphan disease--Fanconi Anemia--that mostly targets Ashkenazi Jews, Jacob Grossman is a ray of light to a family and community who couldn't do without him.